Autism working

Autism working

Introduction

Achieving and maintaining employment can be difficult and stressful for autistic adults. Parents and partners also have their concerns, as they often provide employment support and employers, line managers and co-workers need guidance in how to work successfully with an autistic employee.

Unfortunately, many autistic adults who have a job are under-employed, that is, their job does not match their abilities, qualifications, and aspirations or their duration of employment is less than anticipated. This is despite autism being associated with qualities that are sought by employers such as:


ReliabilityAccuracy and precision
PersistenceAttention to detail and a perfectionist
Liking routines and proceduresCreativity and innovative thinking
Problem solvingFactual and technical knowledge
Sense of social justice and compassionNot letting socializing be a distraction
Talent in identifying patterns and systemsIdentifying and correcting errors
Enjoy cataloguing and recalling informationHonest and loyal
Working logically and systematicallyPassion for their chosen career

Having a successful career will significantly improve self-worth and self-identity, provide structure and purpose to the day, an opportunity to make friends, increase income and greater financial independence, and be an effective antidote to low self-esteem and depression.

Career choice

From our extensive clinical experience, we consider that no job or career would automatically be viewed as impossible due to autism. This can include the expected careers in engineering, information technology, science and accountancy but also a career in the arts in terms of being a fine artist, musician, actor or author. We have also known autistic adults who have been successful in the caring professions, from nursing to psychology and caring for animals such as being a vet or zookeeper. There is no automatic restriction on choice of career.

How to choose that career? The first option may be to see if there are employment prospects related to a special interest or talent that is associated with the person’s profile of autism and personality. A childhood talent with LEGO® that develops during adolescence into an intense interest in the design of machines could become the basis of a successful career in mechanical engineering. A determination to understand people may develop into a career in psychology and the caring profession, and a difficulty expressing inner thoughts and feelings using speech may lead to a talent in self-expression and perception in the arts.

We highly recommend that autistic adolescents have a detailed assessment of vocational abilities during the high school years to identify whether a talent or interest could be the foundation of a potential career. There will also need to be an assessment of vocational abilities that need improvement, such as teamwork abilities and coping with changes in job expectations. This information is then included in the high school curriculum. Autistic adults will need similar assessments, careers guidance and improvement of employment skills which could be provided by an employment agency.

When there is a history of failed employment experiences, this can provide valuable information on what skills or employment accommodations are needed and which jobs or workplaces to avoid. It may take several employment experiences before finding the right job with the right employer.

When searching for a job that matches abilities, interests, qualifications, and personality, it is important to find as much information as possible about the social and sensory aspects of the job. This can include personal space such as an open plan or single person office space, working independently or in a team, and sensory aspects such as sounds, lighting, clothing, and scents. It is also important to consider the understanding of autism of the line manager and colleagues and their willingness to learn about autism. Autistic people can sometimes have a ‘sixth sense’ to quickly appraise the social atmosphere of a new situation, and a positive or negative attitude can become apparent on meeting the staff prior to or during the interview. We recommend trusting that intuition.

Job interview

There will probably be a need for guidance in completing the job application form and, deciding whether to disclose the diagnosis. There are no clear rules on disclosure when applying for a job, and it is sometimes a personal decision based on whether disclosure would facilitate or inhibit achieving an interview or being employed. It is also important to decide what to wear for the interview and to rehearse how to answer the anticipated questions during the interview. If autism has been disclosed in the application, it may be an advantage to prepare a brief brochure on autism and associated qualities in relation to the position. The brochure can be attached to the application or given to those conducting the interview.

A job interview is a complex social ordeal. There is an expectation of accurately reading the body language of those conducting the interview, and succinctly and honestly answering their questions. An autistic candidate may have difficulty knowing the non-verbal signals and social conventions in an interview. We highly recommend practice and rehearsal in interviewing techniques and having an informative portfolio of relevant work experience that can be the focus of the interview. If those conducting the interview know that the person has autism, it will help to describe some of the difficulties associated with autism, but that these are significantly less than the qualities required for the position, and that there are strategies to facilitate successful employment.

Starting the job

There are potential employment issues associated with autism that will probably become apparent when starting a new job. These include the social aspects of the work, executive functioning abilities, sensory sensitivity, changes to job expectations and stress management. We have described these issues in some detail and provide strategies to overcome them in our recent publication Autism Working (Garnett and Attwood 2021) These are some of the issues and strategies.

Social aspects

The characteristics of autism include difficulty achieving social and conversational reciprocity, reading non-verbal communication, understanding different perspectives, developing teamwork skills, and following conversational rules. Workplace social communication challenges can also include discussing confidential and personal topics at work and respecting co-worker/employee boundaries. There can be difficulties knowing the social expectations and engagement in social events such as a celebration party and a vulnerability to being bullied and teased.

Strategies to reduce social communication difficulties include having a work mentor to explain the workplace social dynamics and protocols and developing social scripts to explain autism and seek support. Examples include how to communicate a preference for solitude during breaks, end a social conversation and return to work and reading the signals when a colleague or line manager does not want to be interrupted.

Executive functioning

This can include a propensity to be distracted by detail, organizational and planning difficulties, time management, prioritizing, and self-monitoring. We have also noted difficulties regarding unorthodox work routines and coping with errors, both personal and colleague’s errors. The autistic employee may need more supervision and guidance regarding executive functioning abilities than other employees. It is important that the line manager discuss strategies to minimize such difficulties and to have regularly schedules meetings to provide feedback on performance, workplace accommodations and areas for personal improvement.

Sensory sensitivity

The most common sensory sensitivity associated with autism is to specific sounds, but there can also be sensitivity to tactile experiences, light intensity, and aromas. Autistic adults often describe some sensory experiences as painful; the anticipation of such experiences creates anxiety and becoming hypervigilant. There is also the potential for sensory overload which is extremely distressing.

Coping mechanisms include explaining the sensory sensitivity to colleagues and line manager and requesting accommodations such as working some distance from the sound of the hand dryer or fridge and if possible, having natural rather than fluorescent lighting.

Changes to job expectations

A characteristic of autism is a difficulty coping with change and the unexpected. It is inevitable that there will be changes in the work environment, but it is important that the autistic person is given as much warning as possible and provided with an explanation of why there is a change of plan and expectations. This will enable the autistic person to create a new mind set.

It is also important to be aware that while promotion is considered a reward for the quality of work, there can be difficulties if the new role requires greater social and teamwork skills. It is important to consider social communication challenges in career and promotion planning.

Stress management

When work demands exceed an autistic individual’s resources and abilities, stress is the inevitable result. It is important that the autistic employee knows their personal signs of work-related stress, which work situations create significant stress, and that stress levels are communicated to the line manager.

High levels of stress will affect work performance and could lead the autistic person to resign. There may be strategies to reduce stress at work such as having a quiet retreat area to reduce stress and restore energy, using relaxation strategies and an opportunity to de-brief at work or home.

In summary

Autistic adults often have difficulties getting and keeping a job, despite having many qualities that employers seek. We need to assess an autistic person’s employment attributes and challenges, enhance their employment qualities, and address their employment issues. We also need to educate the workforce in how to accommodate and benefit from an autistic employee or colleague.

Employment resources for autism

We have applied our extensive experience of autistic adults to create a seven stage plan to facilitate successful employment in our new book Autism Working and with our colleague Barb Cook, created a presentation on autism and employment to be webcast on the 4th of March with more information at www.attwoodandgarnettevents.com This webcast will be of great interest to:

Employers

HR Managers

Line Managers

Team Members

Mentors and employment agency staff

Autistic employees, and

Autistic adults looking for and maintaining employment.

Parents and carers of autistic adults

Reference

Garnett M. and Attwood T. (2021) Autism Working: A Seven-Stage plan to Thriving at Work Jessica Kingsley Publishers, London.

What is high functioning autism?

What is high functioning autism? An in-depth look

A lot of people still use the term high functioning autism (HFA), which is problematic because it is misleading. In this blog we will define the term, share what is problematic about it, and give you a way of viewing autism that is not only a useful way of talking about autism but also describes the pathway for the most successful outcomes for autistic people.

What is high functioning autism?

First, what is autism? Autism describes a different way of thinking, learning, relating, sensing, perceiving, moving, and empathising (see below). An important word in this definition is different, not disordered, defective or dysfunctional. When people say high functioning autism, they usually mean that the autistic person has autism and typical language skills and average to high average intelligence.

Autism describes a different way of:

Thinking – creative, thinks ‘outside the box,’ literal, systematising, fact-oriented, need to know how things work

Learning – more often a visual and kinaesthetic learner rather than a social or verbal learner

Relating – honest, direct, difficult to communicate inner thoughts and feelings to others, not necessarily interested in people and often confused by their intentions and perspectives

Sensing – a different sensory system for both external (sounds, tactile, taste, visual, smell) and internal (hunger, pain, emotions) senses

Perceiving – notices details, enjoys symmetry, misses subtle social cues and can misread other’s intentions and expectations

Moving – for some, not all, there are particular mannerisms that signify autism, tip-toe walking, a different gait, motor clumsiness, messy handwriting, and sometimes exceptional motor skills for specific sports such as swimming or cycling

Empathising – often overwhelmed by other people’s emotions and unsure how to cope with and convey their strong empathic feelings

What is problematic about the term ‘high functioning autism’?

Using the term high functioning autism implies that there is a linear scale of autism from low functioning to high functioning. Thinking of autism in such a linear way discounts the multiple gifts and challenges that come along with autism.

Rather than existing on a single continuum or dimension, autism is part of the person’s functioning on at least eight dimensions, including their social communication skills, interests, thinking style, behavioural repertoire, motor skills, executive functioning, adaptive functioning, language profile and personality. Thus, the Diagnostic and Statistical Manual for Mental Disorders, Fifth Edition (DSM5, APA, 2013) now refers to autism as a spectrum disorder.

A spectrum is defined in the Cambridge dictionary (Cambridge University Dictionary, n.d.) as a rainbow, each colour defined by different degrees of refraction of light according to wavelength. We can usefully apply this definition to autism by understanding each dimension of autism as being an expression of the person’s different neurology.

In addition, the person’s level of difficulty in functioning on each dimension can be described in terms of severity. For example, DSM5 now describes two dimensions of autism, social communication skills, and another dimension they call rigid and repetitive behaviours (RRBs). RRBs includes different motor movements , rigid thinking or interests, need for routine and consistency and a different sensory profile. DSM5 designates three levels from Level 1, least affected to Level 3, severely affected.

For example, an autistic person can have high level social communication skills, usually because of camouflaging, (Level 1) and severe RRBs, including need for routines, rigid thinking patterns and significant sensory issues (Level 3). In the past this person would be described as having high functioning autism, which can give a misleading idea about the amount of capacity she has, and how much intervention and support she needs. This example is a common experience for autistic girls and women, but happens for males too.

The way we talk about autism affects our thinking about autism

In talking about autism, most autistic people prefer autism first language, i.e. autistic person, rather than person first language, as in person with autism. Putting autism first indicates that autism is part of who that person is, across multiple dimensions, as described above. Autism on its own is not a disability, instead it is a way of being in the world. Another preferred term is neurodiverse, indicating the common mechanism behind the broad spectrum of autistic differences, which is neurology.

The most useful way to think about autism is to understand it as a different neurology expressed in a ‘rainbow’ of ways that always represent both strengths and challenges in the person’s profile. The person is different not defective and deserves respect and admiration for how they cope in a world where most people are not only not autistic, but do not understand someone who is.

Changing the terms we use for autism from “person who is diagnosed with high functioning autism” to “autistic person who is discovered” leads to multiple and various changes in how we understand, relate to, assist and support autistic people. Changing our terminology changes our attitude.

Some of these changes are:

Old AttitudeNew Attitude
I have HFA, I am weird and defective.I am a neurodiverse person with many personality strengths and abilities.
She has HFA, she will never make friends.She is autistic, she will make a loyal and compassionate friend.
I understand HFA because I taught a student with autism last year.There are multiple dimensions to autism. It will take a little while to understand how to support and accommodate the new autistic student in my class.
A person with HFA is likely to be unemployed.Autism is a reason to be sought out by an employer for autism-specific strengths and abilities, including personality strengths.
That person can’t have HFA, their social skills are too good and/or they use eye contact.Some autistic people have superb social skills, including use of eye contact, because they studied other people and learned them. That is an impressive achievement.
That person with HFA is weird, he sits alone in the lunchroom and never socialises.Autistic people are often exhausted rather than energised by socialising, he is taking a much-needed rest.
She is so intelligent; she doesn’t need support. She is just lazy.School is completely exhausting for an autistic person because of being socially and sensorily overwhelmed. She is a Hero for attending. I will plan how she can have true breaks during the day.

When we increase our knowledge about autism, we increase our power for positive outcomes for everyone

Alongside attitude, the best intervention for autism is knowledge. This means learning about autism across each of its dimensions for the person you love, support or work with. There are so many resources for autism (see below).

Tips and reminders for autism

Autism is a spectrum (think of a rainbow) of at least eight dimensions, not a linear dimension from low to high functioning.

Autism on its own is a difference, not a disability.

Most autistic people prefer autism first language, or the term “neurodiverse.”

Approach an autistic person with respect for who they are and how they are in the World. Different is valid, diversity is needed.

The best two interventions for autism are knowledge and attitude.

In summary

The most useful way to think about autism is to understand it as different neurology expressed in a ‘rainbow’ of ways that represent both strengths and challenges in the person’s profile. The person is different, not defective. They deserve respect and admiration for how they cope in a world where most people are not autistic and do not understand autism.

The best interventions for autism are knowledge and attitude. Knowledge about autism in all its dimensions, and an attitude that respects, embraces, and celebrates autism.

We believe this so passionately that, over the past 20 years, we have developed numerous programmes, resources and online courses based on our research and combined clinical experience of several decades.

Our resources are to assist autistic individuals of all ages, and their parents, carers, teachers and health professionals:

Resources for autistic children 4-8 years old

For parents and professionals

“Fun with Feelings” – a two book combination that teaches parents to help their autistic child to manage their anxiety and anger from a very young age to prevent mental health problems later in life.

Garnett, M. S., Attwood T., Ford, L., Runham S. and Cook J. (2020a). Having Fun with Feelings on the Autism Spectrum: A CBT Activity Book for Kids Age 4-8. Jessica Kingsley Publishers.

Garnett, M. S., Attwood T., Ford, L., Runham S. and Cook J. (2020b). Ten Steps to Reducing Your Child’s Anxiety on the Autism Spectrum: The CBT-based “Fun with Feelings” Parent Manual. Jessica Kingsley Publishers.

The online course for Fun with Feelings

During this 5.5 hour course Tony and Michelle describe how to use the Fun with Feelings course with your child for the best outcomes for your whole family.

ONLINE COURSE: Fun with Feelings Training in a CBT Programme for Young Children with Anxiety and Autism

Resources for autistic children 8-12 year old

For parents

Teach your autistic child to understand how like and love is expressed in the family and with friends to set them on a course of better relationships through life.

Attwood, T. & Garnett, M.S. (2014). From Like to Love: Teaching Affection to Children on the Autism Spectrum. JKP: London.

For professionals

Within this book is a 6-session programme that can be run with an autistic child or group of children to demystify the social and emotional expressions of liking and love that strengthen human relationships, but cause so much confusion for autistic children. The programme can be run by a psychologist, social worker, speech pathologist, occupational therapist or counsellor.

Attwood, T. & Garnett, M.S. (2014). Learning How to Express Affection: A Cognitive Behaviour Therapy Programme for Teaching Affection to Children on the Autism Spectrum. JKP: London.

For parents and professionals

Our autistic children can experience very strong emotions such as anxiety and anger that can increase their own suffering and the suffering of people around them. Strong expressions of anger and anxiety can lead to exclusion from meaningful activities such as school, family and community activities. These two programmes were developed to assist a parent or health professional teach an autistic child how to understand and manage their strong feelings of anger and anxiety.

Attwood, T. (2004) Exploring Feelings: Cognitive Behaviour Therapy to Manage Anger. Arlington, TX. Future Horizons.

Attwood, T. (2004) Exploring Feelings: Cognitive Behaviour Therapy to Manage Anxiety. Arlington, TX. Future Horizons.

The online course for managing emotions

During this 5.5 hour course parents and teachers will learn why autistic children experience strong emotions, and importantly how to assist the child to express their emotions more effectively, hence improving behaviour and increasing inclusion.

For professionals

A textbook on how to modify cognitive behaviour therapy for autistic children and teenagers.

Scarpa, A., Williams White, S. and Attwood T. (Eds) (2013) CBT for Children and Adolescents with High Functioning Autism Spectrum Disorders. New York, The Guilford Press

Resources for autistic teenagers and adults

Employment

This book comes with a number of short online courses for both the autistic employee or potential employee and their employer or manager to assist in creating success within the workplace.

Garnett, M.S. & Attwood, T. (2021). Autism Working: A Seven-Stage Plan to Thriving at Work. Jessica Kingsley Publishers.

Autistic girls and women

Autistic girls and women often slip under the radar and are diagnosed later because they are successful camouflagers. Specific issues unique to autistic girls and women are discussed in this book and these online courses.

Cook, B. & Garnett, M.S. (Eds. 2018). Spectrum Women: Walking to the Beat of Autism. JKP: London.

Online course for Autistic women, parents/carers and professionals

Online Course – Girls and Women with Autism
Online courses for Professionals who see autistic girls and women

Online course – MASTERCLASS: Intervention with Girls and Women with Autism

Online course – MASTERCLASS: Diagnosis with Girls and Women with Autism

Beating depression as an autistic teenager or adult

This book was written after 6 years of running and researching groups and individual programmes with autistic teenagers and adults, listening to them and adjusting the programme. The result is a 10-stage programme that can be completed at home with a mentor or in a clinical setting with a health professional.

Attwood, T. & Garnett, M.S. (2016). Exploring Depression: A CBT Self-Help Guide for Adolescents and Adults with Autism Spectrum Disorder Level 1 (Asperger’s Syndrome). JKP: London.

The online course on how to make the ‘Exploring Depression’ programme a success

Online Course – Exploring Depression – Training in a CBT Programme for Adolescents and Adults with Autism and Depression
Navigating life as an autistic teenager or adult

This book was written by elders of the autism tribe and co-edited by Tony to address numerous life issues that have been challenging for many autistic people, and to give strategies and ideas for what may work to face these challenges.

Attwood, T., Evans, C.R. and Lesko, A. (Eds) (2014) Been There. Done That. Try This! London, Jessica Kingsley Publishers.

Parents of autistic teenagers can feel frustration and even despair as they watch their autistic teenager struggle with their friendships and relationships, schoolwork, tasks of everyday living and sometimes anxiety and depression. This online course covers all of these topics and more to help create success during the teenage years.

Online Course – Succeeding with Autism in the Teens

Autism in couple relationships

Your intimate partner may be autistic, and/or you may be. We developed this course for neurodiverse couples who wish to increase their understanding of their own and each other’s neurology for the purpose of enhancing their relationship.

The world’s leading textbook on autism level 1

Prior to the American Psychiatric Association (APA, 2013) revising the diagnostic criteria for autism, ASD Level 1 and HFA were referred to as Asperger’s syndrome. A common question was: what is the difference between HFA and Asperger’s syndrome? The answer? They are spelled differently. If you are looking for the definitive guide on this topic, to this day it is still:

Attwood, T. (2006) The Complete Guide to Asperger’s Syndrome. London, Jessica Kingsley Publishers. Currently translated into 16 languages.

The world’s leading training in autism for professionals

Our next live webcast

If you are a professional seeking to develop your diagnostic and intervention skills for autistic children and adolescents, our next live webcast will be broadcast at times that suit US, UK, Australia and New Zealand time zones:

https://attwoodandgarnettevents.com/liveworkshops/

The online courses

Tony and Michelle teach within four leading Australian Universities and are sought out internationally to provide training to health and educational professionals in autism. These four full day professional courses are designed to be taken individually or as a two-day package, depending on the age of the clients you typically see.

Masterclass: Diagnosis and intervention with autistic children and adolescents

Online course – MASTERCLASS: Diagnosis with Children with ASD

Online course – MASTERCLASS: Intervention with Children with ASD
Masterclass: Diagnosis and intervention with autistic adults

Online Course – Masterclass Diagnosis with Adults

Online Course – Masterclass Intervention with Adults

References

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: Author.

Cambridge University Press. (n.d.). dictionary.cambridge.org Dictionary. Retrieved November 27, 2021, from https://dictionary.cambridge.org/dictionary/english/spectru